日本小児循環器学会雑誌 Pediatric Cardiology and Cardiac Surgery

Online ISSN: 2187-2988 Print ISSN: 0911-1794
特定非営利活動法人日本小児循環器学会 Japanese Society of Pediatric Cardiology and Cardiac Surgery
Pediatric Cardiology and Cardiac Surgery 35(4): 264-270 (2019)
doi:10.9794/jspccs.35.264

原著Original

先天性心疾患と出生前診断を受けた妊婦の支援の検討：PICU看護師による出生前訪問を振り返ってPrenatal Visits by Nurses for Families with a Prenatal Diagnosis of Congenital Heart Disease: Review of Survey about the Experience in Our Hospital

福田 あずさ1，荒木 美樹1，平田 裕香1，福島 富美子1，石井 陽一郎2,4，田中 健佑2，下山 伸哉2，宮本 隆司3,5，小林 富男2Azusa Fukuda1, Miki Araki1, Yuka Hirata1, Fumiko Fukushima1, Yoichiro Ishii2,4, Kensuke Tanaka2, Shinya Shimoyama2, Takashi Miyamoto3,5, Tomio Kobayashi2

1 群馬県立小児医療センター看護部Department of Nursing, Gunma Children’s Medical Center ◇ Gunma, Japan

2 群馬県立小児医療センター循環器科Department of Cardiology, Gunma Children’s Medical Center ◇ Gunma, Japan

3 群馬県立小児医療センター心臓血管外科Department of Cardiovascular surgery, Gunma Children’s Medical Center ◇ Gunma, Japan

4 大阪母子医療センター小児循環器科Department of Pediatric Cardiology, Osaka Women’s and Children’s Hospital ◇ Osaka, Japan

5 北里大学医学部附属病院心臓血管外科Department of Cardiovascular surgery, Kitasato University ◇ Kanagawa, Japan

受付日：2018年7月12日Received: July 12, 2018
受理日：2019年5月31日Accepted: May 31, 2019
発行日：2019年11月1日Published: November 1, 2019
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背景：出生前に先天性疾患と診断される機会の増加に伴い，診断後の家族支援の重要性が増加している．群馬県立小児医療センターでは，先天性心疾患と診断された家族の支援を行っており，活動の一つとしてPICUの看護師もパンフレットを用いた出生前訪問を行っている．出生前訪問後のアンケートにより，先天性心疾患と診断された家族が，出生前訪問に求めるニーズを明らかにし，その効果と改善点について検討した．

方法：先天性心疾患を疑われ群馬県立小児医療センターへ紹介受診となり，児がPICUに入室した母親51名を対象とし調査を行った．

結果：対象者のうち23人（45.1％）から研究の同意が得られた．PICU看護師の出生前訪問を記憶していた母親は19人（82.6％）で出生前訪問を全員が「必要」と回答した．その理由は「心配・不安の軽減につながる」「PICUの雰囲気を把握できる」が多かった．しかし現在の出生前訪問では家族が求める情報が網羅できていなかった．

結論：現在の出生前訪問により，家族の不安を軽減する可能性が示唆された．出生前訪問の内容の見直しとパンフレットの改訂を行い，家族の思いに沿った看護を提供する必要がある．

Background: Increased opportunities for prenatal diagnosis of congenital heart disease (CHD) has also increased the importance of prenatal supports for their families. In Gunma Children’s Medical Center, we have provided prenatal supports for families including prenatal visits by pediatric intensive care unit (PICU) nurses.

Objective: Questionnaires were postnatally asked for mothers to whom CHD had been announced prenatally. We clarified their needs and evaluated the efficacy and improvements of prenatal visits by PICU nurses.

Methods: We studied 51 mothers who were referred to our institution because of the prenatal diagnosis of CHD and whose babies were admitted to PICU after birth. Answers for the questionnaire and clinical records were reviewed.

Results: Consents for this study were obtained from 23 subjects (45.1％). Among them, 19 subjects (82.6％) answered that prenatal visits were necessary, because their anxiety and stress could be reduced after their visits or they could know the atmosphere of PICU and care providers. However, mothers required how to become involved with practical child cares themselves.

Conclusion: Current prenatal visits could alleviate family’s anxiety for bearing a child with CHD. It is necessary to revise the information for prenatal visits and provide family care ensuring their needs.

Key words: congenital heart disease; prenatal diagnosis; family support; prenatal visit

© 2019 特定非営利活動法人日本小児循環器学会© 2019 Japanese Society of Pediatric Cardiology and Cardiac Surgery

This page was created on 2019-11-21T16:47:27.853+09:00
This page was last modified on 2019-12-12T09:21:51.000+09:00

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