日本小児循環器学会雑誌 Pediatric Cardiology and Cardiac Surgery

Online ISSN: 2187-2988 Print ISSN: 0911-1794
特定非営利活動法人日本小児循環器学会 Japanese Society of Pediatric Cardiology and Cardiac Surgery
Pediatric Cardiology and Cardiac Surgery 36(4): 313-320 (2020)
doi:10.9794/jspccs.36.313

原著Original

親と離れて暮らす成人先天性心疾患患者の特徴Characteristics of Adults with Congenital Heart Disease Living Apart from Parents

秋山 直美1，落合 亮太1，檜垣 高史2，賀藤 均3，城戸 佐知子4，丹羽 公一郎5，中西 敏雄6，白石 公7Naomi Akiyama1, Ryota Ochiai1, Takashi Higaki2, Hitoshi Kato3, Sachiko Kido4, Koichiro Niwa5, Toshio Nakanishi6, Isao Shiraishi7

1 横浜市立大学大学院医学研究科看護学専攻Department of Nursing, Graduate School of Medicine, Yokohama City University ◇ Kanagawa, Japan

2 愛媛大学大学院医学系研究科地域小児・周産期学講座Department of Regional Pediatrics and Perinatology, Graduate School of Medicine, Ehime University ◇ Ehime, Japan

3 国立成育医療研究センター循環器科Division of Cardiology, National Center for Child Health and Development ◇ Tokyo, Japan

4 兵庫県立こども病院循環器内科Department of Cardiology, Hyogo Prefectural Kobe Children’s Hospital ◇ Hyogo, Japan

5 聖路加国際病院心血管センターCardiovascular Center, St. Luke’s International Hospital ◇ Tokyo, Japan

6 国際医療福祉大学成田病院小児科Department of Pediatrics, International University of Health and Welfare ◇ Chiba, Japan

7 国立循環器病研究センター教育推進部・小児循環器内科部Department of Education and Research Promotion, Department of Pediatric Cardiology, National Cerebral and Cardiovascular Center ◇ Osaka, Japan

受付日：2020年6月9日Received: June 9, 2020
受理日：2020年8月27日Accepted: August 27, 2020
発行日：2020年12月1日Published: December 1, 2020
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背景：成人先天性心疾患患者にとって社会的自立は課題となっている．社会的自立にはさまざまな指標があるが，本研究では親と離れて暮らすことを自立の一指標とし，それに関連する要因を検討した．

方法： 20歳以上の患者会所属者を対象に自記式質問紙を配布し回答を得た．親と離れて暮らすことに関連する要因についてロジスティック回帰分析を使用して分析を行った．

結果：対象者1,626名のうち373名から有効回答を得た．親と離れて暮らしている者は135名（36.2％），親と一緒に暮らしている者は237名（63.5％）であり，就労率は61.9％であった．全対象者，および就業者を対象としたロジスティック回帰分析では，親と離れて暮らすことに関連する要因として，疾患重症度，学歴，雇用状況が挙げられた．

結論：成人先天性心疾患患者が親と離れて暮らすには，疾患重症度が低いこと，学歴が高いこと，雇用状況が正規雇用であることが重要であると示唆された．

Background: Social independence is one of the most important factors among adults with congenital heart disease. Social independence has various definitions. Based on previous studies, the indicators of independence in this population include employment and marital status. In this study, we focused on living apart from parents as an indicator of the ability to live independently even after the death of parents among adults with congenital heart disease.

Methods: A cross-sectional questionnaire survey was conducted, and a logistic regression analysis was performed to identify factors associated with living apart from parents.

Results: Valid responses were obtained from 373 participants. Of them, 237 (63.5％) lived with their parents, and 135 (36.2％) lived apart from their parents. The employment rate was 61.9％. Using a multivariate logistic regression analysis, disease complexity, educational level, and employment status were found to be independent factors for living apart from parents among adults with congenital heart disease.

Conclusion: The important factors associated with living apart from parents among adults with congenital heart disease were low disease severity, high educational level, and regular employment status.

Key words: congenital heart disease; education; employment; social independence; transition

© 2020 特定非営利活動法人日本小児循環器学会© 2020 Japanese Society of Pediatric Cardiology and Cardiac Surgery

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